Wednesday, June 24, 2009

A headbanger in a rockband!

Why does Natalie wear a helmet?
Our little Natalie has been diagnosed with positional plagiocephaly. A big fancy word for ... her head is flat on the back. I noticed her head was a little misshapen at 6weeks old. I told the pediatrician. She sent us to physical therapy for torticollis (stiff neck muscles) which was supposed to fix the probelm. We then saw a neurosurgeon here in BR who told us to have her sleep on her side and it would go away, which we thought was rediculous. Her head was getting worse so I continued to mention it to the pediatrician who finally got us in touch with Dr. Nadell a neurosurgeon at Children Hospital in New Orleans. He has reccomended that she wear a helmet to help her head grow properly. Many doctors visits later and many trips to New Orleans later Natalie now wears her pretty pink helmet 23 hours a day. She has a 1 hour break after bathtime. It was a major adjustment at first ... emotionally for me because I couldn't kiss her beautiful little forehead anymore and physically for Natalie because it was a little uncomfortable. We have worked through all the initial challenges at this point. She is such a brave little trooper. We are hoping that she will only wear it for a few more months. I would love for her to have it off by her first birthday ... but we will see. I had a mealtdown our first time in public because a stranger in a store asked me "how did you get one normal one and one not" - referring to the girls. Her comment assumed that Natalie was not normal. I cried, she didn't apologize and continued by asking if Natalie had Down-Syndrome. I cried some more!! Our second day out in public a lady asked me if Natalie had epilipesy. I did a bit better than the day before by faking a smile and simply responding "No." My dad suggested that when questioned about the helmet I should say "She is a headbanger in a rockband!" I love my dad!!!

Natalie's head being scanned. The sock on her head has wires that attach to the camera and computer to make a 4D image of her face and cranium. The images are sent to Arizona where the helmet is manufactured.


Natalie's first time with the helmet on ... she was thinking what is this thing on my head??


The orthotic technician is custom fitting the helmet to Natalies head. She has a machine that trims ear holes, trims it above the eyebrows and will shave out the inside of the helmet each time we visit to direct the growth of Natalies head.



7 month pictures


For Mothers Day "we" (wink wink) decided to take the girls pictures here at home. It wasn't worth the saved money to me!! Paul of course feels differently!! LOL. I like the pictures but it was rather stressful trying to get them taken, printed and mailed on time to our family out of town!! I much prefer going to Portrait Innovations where you leave that day with the photos!

So, the girls are 7 months in these pictures.


Abigail Grace


Natalie Adelle

Happy Fathers Day


Happy Fathers Day Paul!! I truly enjoy watching you with our girls. You are a wonderful father. I find joy in seeing you love our girls- playing with them, comforting them, teaching them, praying with them & for them, making them laugh etc. Thank you for working so hard so that I can stay home with them each day. I love you.

We started the day eating breakfast together at the table- unfortunatley a rare event these days. It meant a lot to me! I made whole wheat pancakes and eggs. The girls ate pancakes too! Paul opened his presents and cards- including on that played music. I splurged for the singing hot pepper card ... i couldnt resist! I had suprised him and had the girls pictures made for Fathers Day. You can see one of the pictures by his cards above. We all went to church together which was very nice too! We had a suprise visit from Paul's mother, father, little sister and cousin. The girls put on quite a show crawling, pulling up, babbling etc.

The girls missed celebrating with Opa (my dad) but they are looking forward to seeing him in just a few weeks. I also though about my sweet Papa. Its hard to believe he has been gone for three years. I know he would have loved seeing our precious little girls ... I feel confident he is watching from above!

I had intended to get a family picture at church ... but the girls were tired and fussy so sadly i missed my opportunity!

Friday, June 19, 2009

URGENT PRAYER REQUEST

Our dear friends Jodi and Tristan who are expecting their first child, a little boy, in August lost EVERYTHING in a fire at their apartment tonight. Please, Please pray for their precious family!! I am co-hosting a baby shower for Jodi next weekend and hope that we can help her and her husband prepare for the arrival of their sweet baby boy!! You can read more about their little family here: http://www.tristanandjodibernard.blogspot.com/

Tuesday, December 30, 2008

Happy Birthday Opa


This post is a little late ... my dad (Opa) celebrated his birthday November 26th. I love this picture of him with the girls!! He looks so happy and proud.

Thank you Opa for all your prayers to get us here. We loved snuggling in your arms during Thanksgiving. We can't wait to come see you this summer and go on your boat. Opa ... will you take us to the waterfall??
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Monday, December 29, 2008

Sleeping Beauties


Grace


Natalie

Ornament Party


Camille and Hayes

Ryan


Carmen and Natalie



Jennifer and Grace


You have all heard me talk about the babies I have nannied for ... I had a very special day with them recently. When I nannied for Hayes I made an ornament for his parents for Christmas with his handprint - putting paint on it and turning each finger into a snowman. It turned out really cute. I made another one the following year at Carmens request. Then last year it turned into a slightly bigger event when she invited her girlfriend Christine (the mother of baby Cole) and we made ornaments for Hayes, Camille and Cole. (I ended up watching Cole after finding out that he needed someone to keep him during the day.) This year Carmen decided it was part of her Christmas traditions with the kids. She invited he girlfriend Brandi and her little boy Julian, Jennifer the mother of Ryan (you will remember that I was his nanny before Paul and I got married) and Christine (and baby Cole). We planned on making ornaments for all the kids- including the girls and having lunch and girl talk. It was also an opportunity for everyone to meet and love on the girls. Sadly, baby Cole woke up that morning with a fever and couldn't make it. I hope to see him soon.
The ornaments were a huge success. The kids did great! We had large clear and frosted bulbs for the "big" kids and small clear bulbs for the babies. I couldn't believe how big their hands were. Its amazing how fast they are all growing. I was especially caught off guard when I made Camilles ornament. I held her big girl hand in mine and wondered where time had gone. I looked at Carmen and said "Where has my baby gone?" Camille was sitting on my lap at the time and immediatley leaned in and put her cheek on my cheek. TALK ABOUT MEALT YOUR HEART!! It was like she was saying "I am right here!" Ryan is getting so big. He is 6 years old now and has an adorable dog Freddie and enjoys swimming. I can't believe this is the same little boy that I used to snuggle with each day. Hayes is almost 4. He is reading and loves Montessori school. I can't believe this is the same little boy I rocked to sleep each day. Oh how I love these kids!! I have my own girls now ... BUT these children will always be MY babies!! I LOVE YOU RYAN, HAYES, CAMILLE AND COLE!!